We plan to have nurses on site to help monitor the children and watch for signs of illness. However, all medical care must be assumed by the families, and if your child is showing signs of illness they will not be allowed to participate in the OxyKids camp activities. All parents must remain at the conference if they child is in the day camp. If there is not a designated family member/caretaker at the conference, you must take your child with you when you leave.
New Family Information(pdf)- This is a 1-page description of the chILD Foundation Programming that can be printed and given to your patients in the clinic. It contains our website link and a phone number where they can contact the foundation directly.
Get up and Go (pdf)- This is a comprehensive guide to living with chILD and is a great resource for families. If you would like some hard copies of this to have in your clinic, please contact us.
ATS Series (pdf)- This is a single page printable informational sheet on chILD produced by the American Thoracic Society.
Gwendolyn S. Kerby, MD, Brandie D. Wagner, PhD, Jonathan Popler, MD,Thomas C. Hay, DO, Carol Kopecky, RRT, Stephanie L. Wilcox, RRT, Ralph R. Quinones, MD,Roger H. Giller, MD, Frank J. Accurso, MD, and Robin R. Deterding, MD (2013) Abnormal Infant Pulmonary Function in Young Children With Neuroendocrine Cell Hyperplasia of Infancy. Pediatric Pulmonology 48:1008–1015 Download
Lisa R. Young, MD; Gail H. Deutsch, MD; Ronald E. Bokulic, DO; Alan S. Brody , MD; and Lawrence M. Nogee , MD (2013) A Mutation in TTF1 / NKX2.1 Is Associated With Familial Neuroendocrine Cell Hyperplasia of Infancy. CHEST. 144(4):1199–1206
J. Popler, MD, W.A. Gower, MD, P.J. Mogayzel Jr., MD, PhD, L.M. Nogee, MD, C. Langston, MD, A.C. Wilson, MBBS, FRACP, T.C. Hay, DO, and R.R. Deterding, MD (2010) Familial Neuroendocrine Cell Hyperplasia of Infancy. Pediatric Pulmonology 45:749–755.
Lisa R. Young , MD ; Alan S. Brody , MD ; Thomas H. Inge , MD , PhD ; James D. Acton , MD ; Ronald E. Bokulic , DO ; Claire Langston , MD ; and Gail H. Deutsch , MD(2011) Neuroendocrine Cell Distribution and Frequency Distinguish Neuroendocrine Cell Hyperplasia of Infancy From Other Pulmonary Disorders. CHEST 139(5):1060–1071
Brody, Alan S. and Eric J. Crotty (2006) Neuroendocrine cell hyperplasia of infancy (NEHI) Pediatric Radiology 36:1328.
Robin R. Deterding, MD, Catherine Pye, MD, Leland L. Fan, MD, and Claire Langston, MD (2005) Persistent Tachypnea of Infancy Is Associated With Neuroendocrine Cell Hyperplasia. Pediatric Pulmonology 40:157–165