All of the chILD diagnoses are rare and many doctors may not know much about how to diagnose or treat chILD. So it is important that you find a doctor that has experience with treating chILD patients or is willing to consult with a chILD specialist.
We work closely with the Children’s Interstitial Lung Disease Research Network (chILDRN), which is a group of dedicated physicians and researchers that are working to improve diagnosis and treatments for chILD and to find cures for this group of devastating lung diseases. Throughout this network, there are several chILD Centers that have multidisciplinary teams that have expertise in this specialized field and can provide the most up-to-date diagnostics and treatments. These centers are willing to see patients in the clinic and some will offer to consult with your child’s pulmonologist to help manage their care.
If you do not live near a center or satellite, it is important that you find a local pediatric pulmonologist for your care and routine follow-ups. Identifying a good medical team is important in managing the chILD patient.
We are working on listing contact information for our Research Network Centers. This will be updated in the near future.
Children’s Interstitial Lung Disease (chILD) Clinical Centers
A chILD Clinical Center is defined as a medical center with a multi-disciplinary medical team that has been recognized by the chILD Foundation as possessing the personnel and resources necessary to provide comprehensive evaluation, treatment, and education to persons with known or suspected chILD and to their health care providers. These Centers have multidisciplinary teams that see a large number of chILD patients. They are also heavily involved in the chILD Research Network.
- Boston Children’s Hospital
- Children’s Hospital Colorado
- Children’s Hospital of Pittsburgh of UPMC
- Monroe Carell Jr. Children’s Hospital at Vanderbilt
- Rady Children’s Hospital of San Diego
- The Children’s Hospital of Philadelphia
These centers have physicians who are active in the research network and have expertise in the care of chILD disorders.