Babies and young children with chILD are a special group who need a lot of extra care. Things like oxygen and breathing support can be hard for this age. Eating and growing is so important during this time, but are often harder for young kids with chILD.
The sections below share basic information about treatments and supports for this age group.
click here to download patient packet. (coming soon)
Oxygen Therapy
Many types of chILD make it harder for the lungs to move oxygen to the body.
When a person breathes, air passes through the airways into tiny air sacs called alveoli. These alveoli are where the oxygen we breathe passes into the blood. This is also where carbon dioxide (a waste gas from our cells) leaves the blood so we can breathe it out. Doctors can measure the amount of oxygen in the blood (oxygen saturation) using a pulse oximeter. If oxygen saturations are low, your child may be given oxygen to use at home. Read More
Nutrition
Nutrition is very important for people with chILD. When your child grows, their lungs grow too.
Babies and young children with lung disease can have trouble growing and gaining weight. This is because they may use more energy (calories) to breathe. They usually need to eat more calories than other kids without lung disease. Your medical team may include a dietitian who can help make sure your child is eating what they need to grow. Read More
Home Supplies
Supporting babies and young children with chILD usually means needing to use medical equipment at home. Your medical team will work with a homecare or Durable Medical Equipment (DME) company to make sure the right supplies are ordered for your child. Read More
Some examples of DME include:
- Oxygen and monitors
- Nebulizer machines
- Suction machines
- Ventilators or positive pressure machines
- Feeding tube supplies
Travel
Information coming soon
Keeping my Child Safe
Information coming soon
Staying Active
Information coming soon
School Support
Information coming soon
Mental Health
Information coming soon
What to Watch For
Information coming soon
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Email: info@child-foundation.org