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Children's Interstitial Lung Disease - ChILD Foundation

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chILD News

Dr. Anthony Shum Receives ATS Research Program/chILD Foundation

The ATS Research Program and the chILD Foundation have awarded Anthony Shum, MD, of the University of California, San Francisco $80,000. The award will support Dr. Shum’s research project, “Defining the pathogenesis of childhood ILD in COPA syndrome.”

 The ATS Research Program Partner Grants provide crucial support to talented investigators from around the world, launching careers dedicated to scientific discovery and better patient care.

Dr. Shum wrote in his application summary that his proposal will “provide critical support for me to advance studies of lung disease pathogenesis of COPA syndrome and produce preliminary data that will form the basis for larger extramural funding.”

“The Children’s Interstitial Lung Disease Foundation has been privileged to partner with the American Thoracic Society on funding these types of important research projects since 2010” said Wayne Danson, Foundation Board Chairman.  “We look forward to the results of Dr. Shum’s work and its contribution to our effort to ensure more breaths for the young victims of rare lung disorders.”

“Dr. Shum’s innovative project addresses important knowledge gaps in the molecular pathogenesis of COPA Syndrome, a disorder of immune dysregulation which presents in childhood with interstitial lung disease (ILD),” said Karen Ridge, PhD, chair of Scientific Grant Review Committee. “His ATS Research Program/chILD Foundation Partner Grant seeks to link the innate immune adapter molecule STING to disease.  The successful completion of his work will not only be important for understanding lung disease in COPA syndrome, but for other systemic inflammatory disorders that drive type I interferon signaling and interstitial lung disease.”  

Visit our website for more information and to see the complete list of 2020-2021 Research Program awardees.

The application process for the next cycle of grant opportunities will open July 20, 2021. For more, visit the website here. 

About the ATS
The American Thoracic Society and its Research Program are improving respiratory health worldwide by supporting young investigators in pulmonary, critical care, and sleep medicine. The ATS Research Program, established in 2004, bolsters new investigators as they strive to launch independent research careers dedicated to innovation in patient care.

Since 2004, the Research Program has awarded $21.9 million in research grants to 321 investigators who have gone on to secure more than $491 million in federal funding. That’s a return on investment of $22 per dollar awarded.

About the Children’s Interstitial Lung Disease Foundation The Children’s Interstitial Lung Disease Foundation (chILD) is a 501(c)(3) non-profit organization whose mission is to provide compassionate support, education, and hope to children and families affected by these life-altering diseases as well as to accelerate research to find effective treatments and cures for all forms of chILD.

chILD is not a single disease but a group of lung disorders for which there is no cure, and limited treatment options. The prognosis for children affected is varied by diagnosis, but many have high morbidity and some have high mortality rates. Without lung transplantation, the prognosis for some of these children is poor. chILD meets the qualifications as an ultra-rare disease, with a U.S. patient population estimated to be fewer than 10,000. There’s presently limited knowledge of the chILD disorders, even among pediatric pulmonologists.

The chILD Foundation is committed to delivering the financial resources required to make real progress towards a cure, and to improving the quality of life for kids and families impacted by chILD. Fundraising is the lifeblood for our Mission, and the only means by which we can give the breath of life to kids afflicted with chILD. Please visit us at www.child-foundation.org.

Wayne I. Danson assumes role of Chairman of the Foundation’s Board of Directors

The chILD Foundation today announced that effective September 1, 2020, Wayne I. Danson has assumed the role as Chairman of the Foundation’s Board of Directors. He has been an active member of the Board since 2016. In his new role, Wayne will leverage his deep experience in corporate and financial management to further advance the Foundation’s mission of raising awareness of all forms of children’s interstitial and diffuse lung diseases, and raising funds for the development of cures.

A key part of his leadership will be the expansion of the Foundation’s national presence, enhancing our medical and institutional relationships and establishing new cooperative partnerships with healthcare organizations, medical specialists, corporate and charitable organizations, and research centers in the battle against these rare childhood lung disorders.

You can view Wayne’s bio here.

Join the chILD Foundation and the Boston Children’s Hospital for a Lung Family Reunion

The Lung Family Reunion is both fun and educational weekend for children, siblings, and families affected by Children’s Interstitial Lung Disease (chILD). chILD specialists and clinicians will be leading informative presentations and engaging discussions. Families will have an opportunity to learn about these complex diseases, while socializing in a fun and with others on similar journeys.

chILD Foundation Nominates Joe McMonigle as Chairperson

The chILD Foundation is excited to announce that Joe McMonigle as the new Chairperson of the Board. Joe has served in several capacities on the board, including member, treasurer, and vice-chair, over the course of several years. Joe brings a strong, family centered vision to the board. Stay tuned for more updates!

November 28th is Giving Tuesday!

The chILD Foundation establishes Scientific Advisory Committee

chILD Foundation board chairman Aaron Knobloch has announced the formation of a Scientific Advisory Committee (SAC) consisting of leading physicians and researchers focusing on chILD disorders. The committee will help guide the board regarding research priorities as well as how to document and share research findings.

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Podcast: Keep It Real: Thriving with Children’s Interstitial Lung Disease – A conversation with Renee Farrell

All There Is hosted by Kelly Bargabos

This episode features mom, Renee Farrell, discussing life with her children that are diagnosed with chILD. We hope you enjoy listening

Listen Now

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