We are continuously trying to collect, create and update information that can help families cope with the unique challenges that come with caring for a child suffering from these rare disorders. We especially strive to include information about specific variations of chILD. You can find a lot of information about disease-specific symptoms and diagnoses in the “What is chILD” and “Research” sections of this website.
- Living with chILD
- DME 101: A guide to medical equipment commonly used for children with lung diseases
By Virginia C. Dimakis, RN, BSS, Interstitial Lung Disease Program, Boston Children’s Hospital