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chILD Foundation

Children's Interstitial Lung Disease - ChILD Foundation

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Home / Family Support / Living with chILD / Oxygen Supplementation

Oxygen Supplementation

Our bodies are fueled in part by the oxygen in the air we breathe. When we breathe it into our lungs the oxygen crosses from the lungs into the blood stream. The blood then takes it to all parts of the body. Our body cells “eat” oxygen and “spit out” carbon dioxide.

This carbon dioxide travels back through the blood stream, crossing from the bloodstream into the lungs, where it is breathed out. chILD can get in the way of this process. Some children with chILD have to work harder to breathe. Things like eating, crying and playing can be extra tiring. When children do not have enough oxygen for a short time, it may not harm them. They may have no affects you can see and they may not look different. Sustained low blood oxygen levels, like below 88 percent, can hurt the body. The heart gets larger than normal because it has to work harder to keep oxygen in the body. Some children with chILD need extra oxygen to help them breathe better, grow, and prevent heart strain.

Oxygen is a medicine. If your child needs extra oxygen, the doctor will prescribe the lowest amount that can be used safely. Keeping blood oxygen saturation levels (“sats”) above 92 percent helps ensure that the body has the oxygen it needs. Children with pulmonary hypertension need their blood oxygen levels kept at 95 percent or higher. Some children only use oxygen when they sleep or exert themselves. Others use it all the time. Sometimes the amount of oxygen needed changes as the lungs change.

If home oxygen is prescribed, a DME vendor will give the needed supplies. These might include an oxygen source that stays in your home, an oxygen source you take on the go, an oxygen delivery system (like nasal cannulas), swivel connectors, tubing extensions and water bottles. The DME vendor should have 24-hour service in case something breaks or you need help.

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Podcast: Keep It Real: Thriving with Children’s Interstitial Lung Disease – A conversation with Renee Farrell

All There Is hosted by Kelly Bargabos

This episode features mom, Renee Farrell, discussing life with her children that are diagnosed with chILD. We hope you enjoy listening

Listen Now

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