Dedicated to improving the lives of children with any form of children's interstitial and diffuse lung disease through research, family support, and a community united in the pursuit of a cure.
Make a DonationWhether you are a family navigating a diagnosis, a physician seeking resources, or someone wanting to learn more — the chILD Foundation is here for you.
Our mission, leadership, strategic vision, and the community behind the work.
Explore →Disease guides, physician finder, family resources, and support for every stage of the chILD journey.
Explore →Clinical tools, diagnostic pathways, research network, and resources to support your chILD patients.
Explore →The chILD Foundation leads patient-centered research, community education, and clinical partnership to improve outcomes for children and families nationwide.
Funded through a Patient-Centered Outcomes Research Institute (PCORI) Eugene Washington PCORI Engagement Award (EASO-42389)
Explore the CER project →Supported by the Chan Zuckerberg Initiative, this program advances digital education and connects chILD families with the latest research, diagnostic tools, and clinical resources.
Explore CZI activities →Join us in Chapel Hill, NC for our 2027 national conference — bringing together chILD families, clinicians, and researchers for education, connection, and advancing the science of rare lung disease.
View conference details →