Whether you are a clinician, researcher, parent, or advocate — there is a meaningful place for you in the chILD Foundation community. Every contribution moves us closer to answers for children with rare lung disease.
Research participation
Join the CER Project
Two ways to participate in our PCORI Comparative Effectiveness Research project. Not sure where you fit? Sign up and we'll help find the right match.
Meet in small groups organized by diagnosis type to develop and prioritize research questions. Your lived experience directly shapes our research priorities and interests.
Sign up — family group →One-time consultations on five priority topics. Your expertise directly informs the research questions families will develop.
Sign up — focus group →Working groups
Programs & Working Groups
Building on Year 1 PCORI findings, these groups represent our next phase of action — developed with and for the chILD community. Physicians, researchers, and families are all welcome.
Addressing the critical care gap as chILD patients age out of pediatric systems — defining pilots, identifying partners, and building a funding strategy.
Express interest →Supporting children living with chILD-spectrum disease without a confirmed diagnosis — exploring partnerships and advancing diagnostic science.
Express interest →One of the most urgent needs identified by chILD families. Developing O2 on the Go kits and interventions families told us they need most.
Express interest →Leadership & advisory
Join a committee or advisory body
Shape the Foundation's direction by lending your expertise and lived experience to one of our governing or advisory bodies.
Experience in nonprofit governance, fundraising, clinical research, marketing, finance, or law.
Physician scientists who drive our scientific priorities and ensure research reflects the full breadth of the chILD community.
Families and patients at the center of everything we do. No medical background required.
Volunteer & community
Volunteer and host events
Lend your time and skills to support families, amplify our mission, and build community around chILD.
Amplify our mission through campaigns, storytelling, and social media outreach.
Volunteer →The Foundation provides grants to support local educational or social events connecting chILD families.
Learn about grants →A birthday campaign, community walk, or peer-to-peer drive — every dollar funds research and family support.
Start fundraising →Support our missionFinancial contributions fund life-saving research and provide hope to families navigating a chILD diagnosis.
