Boston Children’s Hospital and the chILD Foundation were awarded a CZI joint grant that will provide funding for programs for 4 years. The chILD Foundation programming requirements are as follows:
| Year | Grant Goals |
| 2023 | -Complete a Needs assessment survey and focus groups of chILD families to define priorities and barriers to both care and research participation, which will include questions to identify ancestry- or cultural-specific factors. -Create an educational series that include Social media/web-based information sessions -Create of a National Patient Advisory Council |
| 2024 | -Continue and expand Social media/web-based information sessions -Host 2-4 local Patient events at existing centers to pilot the parent support program -Host a first annual web-based research seminar for families of children with chILD -Circulate newsletter via local PACs and social media |
| 2025 | -Continue programs from Y1/Y2 -Expand Parent education days and support programs to other centers and locations -Develop educational resources for patients, posted on chILD Foundation webpage. |
| 2026 | -Continue to expand patient programming -Post summary of findings with list of new chILD candidate genes and their clinical implications. |