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Empowering Children to Breathe, and Families to Hope

chILD Foundation Logo

Our Mission

Empowering Children To Breathe, and Families to Hope.

The chILD Foundation is a 501(c)(3) non-profit organization whose mission is to provide compassionate support, education, and hope to children and families affected by these life-altering diseases as well as to accelerate research to find effective treatments and cures for all forms of Children's Interstitial Lung Disease (chILD).

chILD is not a single disease but a group of lung disorders for which there is no cure, and limited treatment options. The prognosis for children affected is varied by diagnosis, but many have high morbidity and some have high mortality rates. Without lung transplantation, the prognosis for some of these children is poor. chILD meets the qualifications as an ultra-rare disease, with a U.S. patient population estimated to be fewer than 10,000. There is presently limited knowledge of the chILD disorders, even among pediatric pulmonologists.

Advancing a cure for chILD and improving quality of life for affected children and families requires sustained investment. The chILD Foundation is committed to raising and deploying those resources — funding critical research, supporting families, and building the science that will change outcomes for generations to come.

Guiding Principles

  1. We believe that all pediatric lung disease patients deserve access to accurate diagnoses, effective treatments, and hope for a cure.
  2. We believe that, while individual chILD disorders are extremely rare, collectively this group of diseases comprises a significant number of pediatric lung disease patients who are under-represented in the research and medical communities.
  3. We believe that working together to support all forms of chILD is the most effective way to advocate for these kids. Together we are stronger and we will work tirelessly until we have found cures for all forms of chILD.

Strategic Vision 2025–2030

Our Four Pillars

Everything we do for children with rare lung disease — and the families who love them — is built on four strategic pillars.

Pillar 01

Accelerate Groundbreaking Research & Treatment Discovery

Developing comprehensive research roadmaps, enhancing data infrastructure, and fostering collaborative research across the chILD community.

Pillar 02

Enhance Patient & Family Support & Education

Expanding educational materials, strengthening community connections, and supporting families through every stage of the chILD journey.

Pillar 03

Expand Physician Awareness & Strategic Partnerships

Elevating professional and public awareness of chILD, formalizing collaborations with research institutions and industry, and promoting international cooperation.

Pillar 04

Strengthen Organizational Capacity & Sustainability

Building professional staffing, diversifying revenue streams, and ensuring robust governance so our work endures for every child who needs us.