Family Support

Overview

The Power of Families
It was a small group of families, along with one dedicated physician, who created the chILD Foundation in 2004. As the Foundation continues to grow in size and professionalism, families remain the heart and soul of the organization. We know from experience that loving families are the most critical component of care for children suffering from these debilitating disorders, and the chILD Foundation’s first initiative is to provide support, education—and a vibrant community forum—to empower families so they can provide the most effective care possible for their children.

Families

remain the heart and soul of the organization

A Warm Welcome to New Families
You are among friends here. Although none of us chose this path, it is easier to find your way with the guidance and support of others families that have experienced the highs and lows that you will experience. We will try to help you find answers and support to aid you and your child through this journey. Please register with the foundation so we can find out more about you and your family.

The chILD disorders are a varied group of rare diseases that have can have very different outcomes. We have information and support available to all families that are affected by chILD. By registering with the foundation, you gain access to the following:

Family Education Days

We support Family Educations days where local families and physicians gather to share the most current information on all forms of chILD. It is a unique experience where you can speak with leading expert in the diagnosis and treatment of the chILD disorders. It is also a place for the whole family to come and meet other families that share common experiences. The connections and knowledge you can make at these conferences are invaluable!
If you are interested in hosting a Family Education Day at your chILD center, apply our Family Education Grant Program here.

Family Event Grants
We also support local events where families can get together to support each other. A strong community of support is important for both patients and their caregivers. If you have an idea for a local event that we can support, apply for Local Event Grant support here.

Help with finding a chILD Expert
We can help you find the nearest chILD center or a pediatric pulmonologist near you that is currently seeing other chILD patients. We can also help you get in touch with Research Network Physicians that can help consult with your local physician to help your chILD get the most up to date treatments. Most of these physicians can be found here: Find a Specialist

Social Media
Follow us on Facebook and Twitter, where we will post announcements and updates to this section.

For our UK Families
A UK based non-profit called the chILD Lung Foundation has a Facebook page and its own website. Please visit them at chILD Lung Foundation.