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What is chILD ?

Children’s Interstitial and Diffuse Lung Disease (chILD) is not just one disease. It is a group of rare lung problems found in babies, children, and teenagers. There are many types of chILD. Some cause mild symptoms and some cause more serious illness. All types of chILD make it harder for oxygen to get from the lungs to the rest of the body.

For more information on how the lungs work and gas exchange, click here.

In the Process of Getting Your Diagnosis?

It is important to find the diagnosis early so that treatment can be started. If you think your child may have chILD, talk to your doctor and think about a visit with a pediatric pulmonologist (lung doctor).

Your child may need several different tests to diagnose their type of chILD. There is usually not just one test that tells doctors the answer. Each test is like a piece of a puzzle. Your medical team puts together information from your child’s history, exam, and test results to see the full picture. This can be a scary time for families, filled with worry and the unknown. 

Click on the boxes below to learn more about some of the testing used in chILD. Not all chILD disorders need the same tests or procedures.

Even after testing, sometimes doctors still do not understand the cause of chILD. We are learning more about chILD all of the time. Testing may need repeated over time. It is important to work with a pediatric lung doctor who has experience treating chILD or who is willing to consult with a chILD specialist.

I Know My Diagnosis

Each diagnosis is rare and can be hard to find good information about online. chILD disorders are split up into the 3 types listed below.

We will be working on adding new diagnoses and will add more information about each disorder as we learn new things. This is also where we may add videos or links to learn more about each topic. Check back regularly to see what is new!

Click on the links below to learn more about each disorder.

Disorders That Start in Babies

Systemic Disorders

Connective Tissue Disease Leading to chILD

  • Connective Tissue Disease – Interstitial Lung Disease
  • Pulmonary sarcoidosis

Abnormal immune system response

Disorders from Exposures

  • Chronic Aspiration
  • Radiation-Induced Lung Disease
  • Drug-Induced Lung Disease

Find out more about Living with chILD here.


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