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chILD Foundation

Children's Interstitial Lung Disease - ChILD Foundation

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Home / Family Support / Educational Materials

Educational Materials

Families can improve their care-giving capabilities by learning more about chILD disorders. This web site offers a wealth of information, and more is being added all the time.

  • Check out the Living with chILD section nearby, as well as the What is chILD and Research sections.
  • We are continuously trying to create and update informational brochures about specific diagnoses. Many of these are linked to the chILD Disorders pages in the “What is chILD” section.

Here are a few informative papers and presentations from some of the leading physicians and researchers dedicated to the study and treatment of chILD:

  • What is chILD: The Spectrum of Children’s Interstitial Lung Diseases By Martha Fishman, MD, Boston Hospital, 2017
  • An Official American Thoracic Society Clinical Practice Guideline: Classification, Evaluation, and Management of Childhood Interstitial Lung Disease in Infancy By Geoffrey Kurland, MD, American Journal of Respiratory and Critical Care Medicine, 2013
  • New Coding in the International Classification of Diseases, Ninth Revision, for Children’s Interstitial Lung DiseaseBy Popler, Lesnick, Dishop and Deterding, CHEST Topics in Practice Management, 2013
  • Diagnostic Approach to chILD, Treatment and Future Directions By Alicia Casey, MD, Boston Children’s Hospital, 2017
  • DME 101: A guide to medical equipment commonly used for children with lung diseases By Virginia C. Dimakis, RN, BSS, Interstitial Lung Disease Program, Boston Children’s Hospital
  • Participating in a Clinical Trial – Webinar with Liz Fiorino, Associate Professor of Clinical Pediatrics at Weill Cornell Medicine

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Podcast: Keep It Real: Thriving with Children’s Interstitial Lung Disease – A conversation with Renee Farrell

All There Is hosted by Kelly Bargabos

This episode features mom, Renee Farrell, discussing life with her children that are diagnosed with chILD. We hope you enjoy listening

Listen Now

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