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and Families to Hope

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Would you be willing to take a survey about your experiences with chILD?

Dear chILD Patients and Families,

If you are an adult caring for a child with Interstitial Lung Disease (chILD) or you are a patient over the age of 18 who has a chILD Diagnosis, you may be eligible to participate in a research study that will increase our understanding of attitudes towards patient education and participation in research. We will also gather information about family background, diagnosis, treatments that you have received to help us identify educational needs and barriers to care and research participation.

We have created an online survey for the chILD community. Your participation is completely voluntary and answers are completely anonymous and confidential. It should take 10-15 minutes to complete. You must be 18 years old or older to participate and you may leave the study at any time without risk or loss of personal benefit.

The survey is being conducted by researchers at the University of Oklahoma in collaboration with the chILD Foundation who is focused on improving the care and education of patients and their families. This information will be used to support educational program development for patients and families.

If you have any questions or concerns, please contact Ann Gettys at or Dr. Benjamin Heddy at


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